At the recent Town Hall Forum entitled, "Dementia Dialogues: Practical Advice from Alzheimer's Care Experts," attendees took away some useful information and resources.
To follow up on some of the points made by our speakers, we wanted to share a few helpful links.
Dr. Chang referenced a variety of topics ranging from preparing for the physician visit and utilizing the FAST score summary as well as making arrangements using documents such as the POLST (Physicians Orders for Life Saving Treatment). Below are links to the materials discussed as well as resources to find out more:
You can also help to be prepared for your doctor's visit with this form from the Alzheimer's Association.
Understand that Alzheimer's is a progressive disease. Here is a link to POLST.org so that you can better prepare for the future.
Know Your Resources
Elva Ledesma, in her over 20 years of working with families, was a great resource when guilt, denial and care training were discussed.
In speaking about guilt and denial, Elva reminded us all that we have permission to accept our feelings and know that it's common to experience conflicting emotions. The best thing to do is work to focus your decisions on the things you can control and reach out for support.
One item that stemmed from this discussion was that caregivers often struggle and experience frustration with seemingly simple grooming tasks such as bathing. The National Institute on Aging has a great article geared towards this topic.
When the time is right to place your loved one, there are many things to consider when choosing the right care. Elva spoke about the extensive and continued training ActivCare staff receives in order to meet and exceed the training requirement established by the State of California.
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